We currently have a study for caregivers of patients with Aromatic L-amino Acid Decarboxylase deficiency (AADCd) in the UK. We want to learn about the impact of AADCd on the health-related quality of life of individuals and their caregivers. We are looking for caregivers of individuals with AADCd to take part in a one hour telephone interview and complete some questionnaires (up to two hours total).
No medical treatment will be provided as part of this study. Eligible participants who participate in the interview will receive 200GBP for taking part. If you or someone you know is a caregiver of an individual with AADCd and are interested in participating or would like more information about the study, please contact us at email@example.com