IQVIATM (www.iqvia.com), a healthcare research firm, is currently conducting a research project with patients who have been diagnosed with Wilson’s disease (WD) by their physician and are 12 years or older. The research will involve participating in a telephone interview lasting 75-90 minutes. In appreciation of your time, we are offering a $150 gift card to Amazon.com sent to you via email after the interview is completed.
The study is strictly for research purposes; there will be absolutely no sales or promotional activities.
The aim of this research is to gain your views and is not in any way promotional. Prior to the interview, we will need to obtain confirmation of your Wilson’s disease diagnosis from your physician / staff at your physician’s office. We will not ask you to take any medication before, during, or after the discussion.
For adolescent patient’s (age 12-17) a parent/legal guardian is required to complete the consenting process in addition to the patient assent.