GP5734 Wilsons Disease US

IQVIATM (, a healthcare research firm, is currently conducting a research project with patients who have been diagnosed with Wilson’s disease (WD) by their physician and are 12 years or older.  The research will involve participating in a telephone interview lasting 75-90 minutes.  In appreciation of your time, we are offering a $150 gift card to sent to you via email after the interview is completed.

The research, sponsored by Alexion, will explore the signs, symptom, and impacts of WD. This research may help inform how WD symptoms and impacts are measured in upcoming clinical trials.

The study is strictly for research purposes; there will be absolutely no sales or promotional activities.

The aim of this research is to gain your views and is not in any way promotional.  Prior to the interview, we will need to obtain confirmation of your Wilson’s disease diagnosis from your physician / staff at your physician’s office. We will not ask you to take any medication before, during, or after the discussion.

For adolescent patient’s (age 12-17) a parent/legal guardian is required to complete the consenting process in addition to the patient assent. 

For adult patients (18 years and older) a patient consent is required. 

If you are interested, or have any questions, please contact

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