We would like to let you know about an opportunity to be part of a new research study. This is an exciting opportunity to provide insights to researchers who are interested in understanding more about what life is like for kids living with dyskinetic cerebral palsy, DCP.
The purpose of the study is to identify the areas of the body that are affected by involuntary movements, or chorea, and the activities that bring out or are impacted by those involuntary movements.
We are interested in speaking caregivers of kids, ages 6-11, with DCP. Anyone who is eligible for our study will participate in an in-depth, telephone interview with a researcher for around 60 minutes. Interviews will be conducted September 16 – 20, 2019.
There is no medical treatment being provided as part of this study, but participants will be compensated for their time.
This study is being conducted by Optum, a research organization, on behalf of a pharmaceutical company. Please note that the pharmaceutical company will not receive any identifying information about the people who take part in this study, and any information that you provide as a part of the study will be reported in a way that protects your privacy.
If you are caregiver to a child, aged 6-11, who has DCP and you would like to participate in this study, please contact Cristina, at cristina @global-patients. com. The study team will then share more about the study and determine if you are eligible to participate.
This is an important study and an exciting opportunity for the researchers to hear directly from kids with DCP and their caregivers.