GP0741D Myasthenia gravis, HDFN, and WAIHA patients in the UK

Global Patients is running a study on behalf of IQVIA, a company that conducts market research for authorities, organizations or pharmaceutical companies, among people with Generalized Myasthenia gravis (gMG), Warm antibody autoimmune hemolytic anemia (wAIHA), and Hemolytic disease of the fetus and new-born (HDFN). We would like to understand what it is like to live with these conditions, and your experience with the care you receive.

The study will involve participating in:

  • The completion of some tasks online, which includes answering some questions about your condition. This will take an overall of 60min of work over a week.
  • An interview conducted online (via a computer). We would like to conduct an interview with you and then ask someone close to you to join part of the interview.
    • If you invite your loved one to join the interview, it will last in total 1 hour and 45 minutes. The format will be as follows:
      • A discussion with you alone for 60 minutes
      • A discussion with your loved one for 30 minutes
      • A wrap up discussion with both you and your loved one for 15 minutes
  • If you participate alone, the interview will last 1 hour and 15 minutes

Taking this opportunity to have your voice heard would greatly help understand what is needed to improve the experience for patients and their loved ones and how to better address their needs. Your participation would be hugely appreciated.

We will be providing you an honorarium of 180GBP to patients and 45GBP to caregivers.

For more information, please contact us at joanna@global-patients.com




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