GP0502D Sandhoff and Tay Sachs disease UK

At Global Patients we are launching a new study on behalf of Fulcrum Research Group, an independent healthcare research firm, to learn about the experience of patients with Tay Sachs/Sandhoff Disease and their caregivers.

We will be sharing some potential information about a treatment in development for this rare medical condition and we are looking to understand how to improve that information for patients and families.

Participants would participate in a 60min interview and receive 60GBP as a token of appreciation for their time and effort.

If your are interested in participating please contact us at

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