GP0187E – MLD Patients and Caregivers in the US/UK

We are looking for individuals with metachromatic leukodystrophy (MLD) and caregivers of individuals with MLD to take part in an interview study. The aim of this study is to understand people’s experience of living with MLD and their opinions about a questionnaire.  

 The study will involve:  

  1. A background questionnaire which will include some questions about yourself (and the person you care for).  
  2. A video or telephone interview where a trained interviewer will ask participants questions about the impact of MLD impacts on people’s lives and their opinions on a brief questionnaire. The interview will last around an hour. 

You will receive 100USD/75GBP if you complete the background questionnaire and interview.  

If you or the person you care for are interested in participating, or have any questions about this study, please contact us on

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