At Global Patients, an Iqvia business, we are helping to conduct a study to better understand what it is like to have paroxysmal nocturnal hemoglobinuria (PNH). We are looking for adults (age 18 or older) who live in the US and are currently being treated for PNH.

Study participants will complete an online survey, answering questions about their experience of PNH. The online survey takes about 45 minutes to complete. Some participants who complete the survey will also be asked to take part in a one-on-one interview (by phone or computer). Compensation will be available for all participants who complete the survey; additional compensation will be available to all participants who also complete an interview. No treatment will be given as part of the study.

If you or someone you know meets these criteria and would like to participate, please contact me at miriam@global-patients.com for more information.