On behalf of RTI International (RTI), we are recruiting caregivers of children and adolescents who have been diagnosed with PH1 to participate in a research study to better understand the symptoms and impacts experienced by individuals with PH1. The information that you provide may contribute to future studies examining treatment outcomes for patients with PH1.
Participants will be asked to complete an online survey designed to assess the impact of caregiving on participant health status. It is anticipated that the survey will take approximately 15 – 20 minutes to complete.
Each person who qualifies and agrees to participate will be given $100 in appreciation for their time.
If you are interested, please contact us at email@example.com